Pins and Needles

Random fact: around 25% of women will suffer hirsutism at some stage of their life.

Geography, genetics, medications or certain medical conditions will up the ante.

I’m not sure what the percentage is for ladies who get told about it in a not-so-tactful way.

After almost 3 years of pain and nerve damage in my right leg and foot (from another apparently ‘random’ surgical mishap) I am still searching for a solution. I know I’ll never get permanent relief- the doctors have already given me that terrific news- best I can hope for is short-term benefits. I have tried physiotherapy, occupational therapy, hydrotherapy, and any number of alternative therapies in a bid to ease my pain and improve my movement. Some more successful than others.

A while ago I once again found myself flat out and face down on a treatment bench. My torturer, I mean therapist, today had already stretched and massaged my injured side within an inch of its life, and now decided to finish off with some ‘dry needling’. The very term also made my mouth go dry with apprehension of what agony may lay ahead.  Or should I say behind.

I’ll get to that, because here I should mention that I had to take my girlchild with me, being a pupil-free day at school, and no husband at home to have her (I had managed to offload my boychild on a playdate. Just as well as it turns out). She’d sat nice and quietly through the initial assessment and treatment thus far (as quietly as a 9 year old can anyhow) but when my physiotherapist brought out the needles she was all eyes, and all questions.

“Are you really going to stick those in mama?”

“How far do you have to stick them in?”

“Are you going to use all of them?”

“Does it hurt?”

“Will you make mama bleed?”

And so on.

So there I am laying there, half-bare-buttocked, twitching in direct relation to the depth of the needles (they were huge!), eyes closed, trying to remember to breathe, all the while pushing my face through the cut out in the bench with a lovely little sheen of perspiration breaking out; and what do I see when I open my eyes again?

My darling daughter’s face, about 2 inches away from mine, peering at me in concern:

“Are you ok mama? ‘cause you look like you’re really hurting!”

“I am hurting darling, but I’m ok,” I lie through my teeth and through that wicked little face-hole.

And yet Little Miss Chatterbox chatted on:

“Random question mama, but is it ever possible for ladies to grow a little moustache?”

How is that random?!  Her face is mere centimetres from mine, I can feel the beads of sweat on my upper lip, and yes I admit it, I am approaching that age where the females in our family start to sprout a few unwelcome hairs here & there (conversely, while the male members lose ‘em!)

So now am I not only in pain, feeling embarrassingly exposed, with enormous needles in my butt and back…I now am only too aware of hair somewhere!!

To both their credit, there was much denial - and no laughter- from either therapist or my daughter. And I have to say, as a distraction tool it worked wonders. Wasn’t thinking about the pain at all was I?!

Until the needles started coming out again, and my little girl gave a narrative about the various drops of blood appearing.  And how red and sore my butt looked.

Quick, let’s think about hair removal techniques again instead.

Oh and next time I’m going to make sure my appointment is on a school day!

 

Jx

© 2013-2014

104 Needles

That's how many, on average, my son has in any given year.

104 times each and every year I must prepare medication, draw it up into a syringe, before sticking the sharp end into my little boy.

More, if you count the extra shots for blood tests he needs to monitor the effect of what we inject.

You better believe both he and I hate it every single time.

See, despite being diagnosed with supposedly the 'best' type of Juvenile Arthritis there is (if there is any such thing as 'good' JIA), with traditionally the best prognosis for remission- medicated or spontaneous- by the time a child hits adolescence; my child isn't following the textbooks and instead of stopping the meds, we've had to increase instead.

9 years into this JIA journey, he and I are still finding a way to making medicine more fun.

When your child is first diagnosed with a disease like Juvenile Arthritis, a parent- usually the mother (nothing against dads, it's just the way it is) gets a fast track to a medical degree, without the fancy certificate to whack on your wall.

You pick up the lingo almost by osmosis to understand the parade of practitioners you pass on the path to a pain-free childhood. I can discuss ANA, CRP, ESR, FBC, and LFTs with the best of them (my Beloved however has missed a few lessons and doesn't yet know his RFs from his ABCs).

You also get a few tips on how to administer medication at home that is more at home in a hospital. If you're lucky, it comes as a liquid that's fairly well received. Tablet form's a little harder to swallow. If you've ever given a pet a pill, you'll know just how hard it can be. One of the tricks is hiding crushed tablets in foodstuffs of similar colour until they catch on - despite our best intentions our son still has an aversion to yellow food (Methotrexate is yellow). He's not alone, studies have shown kids all over the world have had the same reaction to cheese, custard, bananas, even egg yolks.

When all else fails, it's needle time.

For someone who's never given an injection before, it's a pretty daunting task.  Tougher still if you're among the many who have needle phobia and faint at the sight of blood (my Beloved again).

They tell you to practice on an orange, or any citrus fruit with a skin similar to that of a human body - just take an empty syringe and practise poking the needle through. A little deeper for intramuscular injections, a little less for subcutaneous (see, told I could do medico-speak).

Braver folk take the next step and stick it into themselves, to find the spot that's as painless as possible.  I've only ever done so by accident (it wasn't that painless, incidentally), and over the years I've become much better at avoiding needlestick injuries.

There are also ways to numb the site so it'll be alright on the night. But EMLA® and AnGEL® both take time to work...time for fretting about what's to come.  Ice can numb the skin, but also makes it tougher to pierce and it's more like poking through a watermelon than an orange. After a few years of tears, the doctors told us as long as the skin itself is clean, you can go without, which reduces the pre-emptive fear somewhat, if not the sting itself.

We've come through it about 364 times so far. That's like a needle every day for a year, with a day's grace for Christmas.

And so twice a week for the next year or so we will do it again, and my little boy and I will share the pain with the purpose of one of these drugs working one day.

104 more chances to stop a disease in its tracks, and bring an end to using my son as a human pincushion for the rest of his life.

I don't want to think about how many needles we'll be up to, if we don't.

Jx

©2012